Paintball Players Unite to Fight Ankylosing Spondylitis
By Brian Warner
Nov 26, 2007, 14:40
Young guns are preparing for a battle-the guns are loaded with paintballs and the enemy is Ankylosing Spondylitis (AS). A new nonprofit in Ohio, Athletes Joined Against Spondylitis (AJAS), has been created to raise awareness and funds to fight a crippling form of arthritis-through paintball.
Veteran paintball player Brian Warner experienced severe back pain for years, which progressively limited his mobility and ability to compete in paintball tournaments. Finally, after 10 years of fruitless tests, he was diagnosed with Ankylosing Spondylitis, a form of arthritis. Warner immediately decided to direct his passion for paintball toward raising funds for AS education, research and treatment. And thus Athletes Joined Against Spondylitis was born.
“I’ve been playing tournament paintball since 1995,” says Warner. “It was getting harder and harder to compete in the sport that I loved. There were days that I was physically unable to walk, and no one knew what was wrong with me. I waited 10 painful years for someone to recognize my disease for what it is-no one should have to go though that. Ankylosing Spondylitis just isn’t a household name, even amongst doctors. There’s too little research, too little understanding. If I can change that, even a little bit, through my passion for paintball and athleticism?it’s just what I have to do.” AJAS will use its proceeds to support AS research and treatment with a many-faceted attack:
During the 2007 off season, Warner will be assembling “Team FUSE” competitive paintball teams, to focus a spotlight on Ankylosing Spondylitis by competing in national paintball tournaments and disseminating information about AS. AJAS will donate the majority of its proceeds to the Spondylitis Association of America. SAA’s mission is to help find a cure for AS and to empower people with AS. AJAS embraces that mission and intends to extend it by providing financial assistance to the underinsured and providing a very-real platform for publicizing their efforts, through Team FUSE and competitive paintball.
AJAS/Team FUSE will host annual FUSE days, wherein area youth with disabilities will be able to experience the fun and competition of paintball to the best of their capabilities. “AS strikes mostly young males in their 20’s,” says Warner. “Since this is the major paintball demographic, the sport is a perfect platform to raise awareness and funds for AS.” In addition to raising funds and awareness, Warner hopes to become a personal role model for young people ? boys and girls alike-who have disabilities.
Team FUSE will be competing in the National Professional Paintball League (NPPL), Division II, for the 2008 season and will be holding tryouts on January 12 and 13, 2008. Warner, AJAS, and Team FUSE are currently soliciting donations, sponsors, volunteers and participants to gear up for the 2008 season. To learn more about Ankylosing Spondylitis, Athletes Joined Against Spondylitis or Team FUSE, contact Brian Warner at 513-617-5374 or email brian.warner@joinedagainst.org.
About Ankylosing Spondylitis
AS, a systemic autoimmune disease, is a type of arthritis that affects the joints between the vertebrae of the spine, especially those found in the lower back. AS causes inflammation in the areas where tendons or ligaments attach to bone, which then makes the vertebrae merge ? or fuse ? together. Gradually, the disease moves up, affecting joints higher and higher on the spine. Besides the joints, the lungs, heart and eyes can also be affected. A study conducted by Harris Interactive (on behalf of the Spondylitis Association of America) presented a grim view of life with AS:
55% reported their spine had at least partial fusion.
60% had limitations to their daily lives.
29% reported that when pain was at its worst, they were unable to move and were incapacitated.
51% had trouble breathing because of the disease.
More than one million people have AS. It most commonly strikes men in their 20s-and children account for about 5 percent of all cases diagnosed. It is estimated that more than half of those patients had to search for more than five years to be diagnosed; almost a third took 10 years or more.
Athletes Joined Against Spondylitis: raising awareness and standing tall.
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